When my son had fallen down, he lost his left side, back, neck and many other things, and it took an infinite amount of therapies - mainly at home since the kid also has to do other things like schooling and then the insurance system fails, along with the modern medical system, as one needs to dedicate a therapist almost 24 hours round the clock for years running into 12 years till now.
We managed to get his most part back - even the left side arm and hand activity and the right hearing, besides many other things, which were ruled out by the modern medical experts. The medicine in 90s had still not understood the intricacies of the brain and PET and FET were not yet invented.
In order to help my son, I had the similar idea but a step ahead and simpler. It was basically "mouse and cursor" approach, where the right good hand would be used as a mouse, and the left hand would be used as a cursor. So with good part of brain, one moves the right hand, and the right hand moves the left hand, in turn helping brain learn and adpat to the new skill. And this needs to repeated over many millions of times over a long period of time - it is almost like taking a professional commitment.
The mantra is "repeat, repeat, repeat.." and "stimulate, stimulate, stimulate", and this was not known in 1996. Here when the Science Stops, the Philosophy Starts (one needs to have some belief where to look for what even in doing a research). But when I was carrying my baby in arms from Kanpur India in 1996 for a long arduous Fight and Flight, which was still suppose to carry on for years -- after fighting with the Insurance System in the US over 4 weeks in Nights as it was Day time in the US and not sleeping for almost 5 weeks except for catching naps here and there, and canvassing along with the medical community members running into 25, spread over 5 organizations, to get a $165000 Dollar commitment, to send a Doctor, Nurse and all the Necessary Equipments to save life in Mid Air, along with a Air Ambulance Plane -- the words of famous Sufi Saint Poet Kabir were ringing in my ears, which said, "Even a soft rope makes an impression over the hard rock wall of the village well, over the years and after repeated fetchings of pales of water". This was managed over the PCO Phones as at that time the Telecom Revolution in India has still not happed, and in the peak mid summer, two KLMs Business Classes were knocked out to convert into a make-shift hospital. Now in 2008, here to get United Health Care and Cisco Pay 18000 USD for a HBOT Therapy, the fighting is going for last 6 months.
So I wish, some one who reads this story, helps me with the idea I had. I had approached many researchers and scientists all over the Europe but nothing much happened. Somehow, the arm and the hand which was like a rope and shriveling and shrinking, for 8 months, and written off by the doctors, was eventually taught by me to have sensation and motor control. The sad part was getting the wrist back, and it has taken years to get some control but it is still weak. The hand is not strong enough to Extend, along with the Wrist, but can Flex and manage to do a few things. Since their a Traumatic Brain Injury case, which results into Brain Lesions, the hand has developed Spasticity, e.g., Stiffness, and that hinders with the recovery.
For last 12 years, we had been also visiting a Functional Electrical Stimulation Therapist, whom I discovered after reading a research paper, and luckily found to be 50 miles away from home, though she happens to be of a rare kind, for children with these issues, and people all over the word has approached here off and on.
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